Friday, April 19, 2019

Big Changes!

Wow, what a week! It feels like Suzie is on warp speed as she is progressing so rapidly!
First, Suzie now LOVES her walker and is really starting to cruise with it. Our backs are very thankful! 🙌
We brought it to school today and she rocked it almost the whole day! She was just beaming and we will now will bring it once a week so she can work with her physical therapist there. She also has stood independently a few times and at school did it for 10 seconds. We had hoped that she would walk by this time next year and then sped up our prediction to the end of summer. Now I’m thinking it may come even sooner! She is quickly gaining stability and strength.
Next, Suzie started using the potty! She’s now in pull ups and is doing great. She even woke me up one morning to help her go potty.
Also, we moved her into Addie’s room after sharing our room for the last year. The transition felt pretty seamless and she loves sharing a room with her big sis. We also no longer have to sit in the room until she’s asleep. She’s becoming so independent!
Lastly she has a loose tooth and a permanent tooth coming in! I’m not ready for her cute little teeth to fall out!
It really feels like my baby has grown a year in just the past week! She just keep blowing our minds!

in bed after a fracture scare, she was fine though

washing her hands (she loves to do this)

walking with daddy

school picture, not so great

sisters, and now roommates

using her walker

Monday, March 25, 2019

New Glasses and more...

It’s been a fun few weeks and life is good! We’ve finally been able to get into a good routine and Suzie is getting stronger and braver every day. She’s been working with physical therapy at school and we are seeing some of her progress.
She also got glasses! She doesn’t love wearing them but is getting better at keeping them on and is super cute!
It’s been 3 months since her last fracture (not counting surgery) and we hope and pray that this streak continues!
This past weekend Suzie didn’t want to wait for Mommy to finish the dishes and put herself down for her nap! 🙌🙌🙌 I checked the monitor and was amazed to see her lying in bed!

Suzie has been using this bumbo chair in her baths for the past year. Without it she cries and clings to the sides of the tub with white knuckles. Last week she got herself out of it during her bath! She’s so brave!!

She likes to practice standing by my bedside


Covered her head to avoid having to wake up

When you can’t get your shoe off, just use your face for leverage!



Her kindergarten class is having a contest and keeping track of how often they brush their teeth. Suzie is taking it very seriously

Thursday, March 7, 2019

One Year!

We met Suzie just over a year ago! That feels so crazy to say as I clearly remember many days in the early months wishing to be a year into this and wondering what life would be like. Well, it’s pretty darn good!! The one year mark did not trigger any trauma issues with Suzie (people can have traumaversaries) and she is healing and getting braver with her legs every day.

We did get news that one of the rods has migrated and may need to do a small procedure to tap it back into place but it’s not bothering her right now so we are just watching it.

Suzie started scooting around after a couple days out of her brace. After about a week she started going up stairs again and just recently she started climbing on the couch and pushing up to almost standing while holding onto furniture. The exciting thing is that we now get to encourage all of this and don’t have the fear of breaking just from standing!


Last fall we installed an in ground pool to allow Suzie to do water therapy on a regular basis. She was so excited to use the pool again!! This girl loves being in the water which is great because it’s the absolute best thing for her!


Also, for Christmas she got a little stationary bike, but after her femur broke, we hid it away and didn’t even show her. Last week we got it out and it’s a hit and will be wonderful therapy for her and the game that it shows on the iPad helps her learn her letters...two for one!


She also was able to get her smo ankle braces. We just got them and are gradually getting her used to wearing them. 


We love to look back and see how far we all have come!



bike trainer